Me first -Bibliography


Suggested articles and publications:

We have collated some of the key journal articles and publications that we have drawn on to inform Me first.  Some of these are free to access – where we know this to be the case we have put these in bold and included a link to the website.

We hope that you find these interesting and useful.  Please do let us know if there are other publications you think we should add to the list by emailing [email protected]


Alderson, P. (1993). Children’s Consent to Surgery, Open University Press.


Alderson, P. (2007). ‘Competent children? Minors’ consent to health care treatment and research’. Social Science & Medicine (1982), 65 (11), 2272-2283.


Alderson, P. and Montgomery, J. (1996). Health Care Choices: Making Decisions with Children. London: IPPR.


Alderson, P., Sutcliffe, K. and Curtis, K. (2006a). ‘Children as partners with adults in their medical care’. Arch Dis Child, 91 (4), 300-3.


Alderson, P., Sutcliffe, K. and Curtis, K. (2006b). ‘Children’s competence to consent to medical treatment’. The Hastings Center Report, 36 (6), 25-34.


Barbara Ansell National Network for Adolescent Rheumatology. YOURR Project: Young People’s Opinions Underpinning Rheumatology Research. Summary of Good Practice When Involving Young People in Health-Related Research. 22 July 2015.


Beresford, B. and Sloper, T. (1999). The information needs of chronically ill or physically disabled children and adolescents. York: Social Policy Research Unit, University of York.


Beresford, B. A. and Sloper, P. (2003). ‘Chronically ill adolescents’ experiences of communicating with doctors: a qualitative study’. J Adolesc Health, 33 (3), 172-9.


Bielsa, V. C., Braddick, F., Jané-Llopis, E., Jenkins, R. and Puras, D. (2010). ‘Child and adolescent mental health policies, programmes and infrastructures across Europe’. International Journal of Mental Health Promotion, 12 (4), 10-26.


Butz, A. M., Walker, J. M., Pulsifer, M. and Winkelstein, M. (2007). ‘Shared decision making in school age children with asthma’. Pediatr Nurs, 33 (2), 111-6.


Cahill, P. and Papageorgiou, A. (2007). ‘Triadic communication in the primary care paediatric consultation: a review of the literature’. The British Journal of General Practice, 57 (544), 904-911.


Common Room (2015). ‘Talking About Rights. The Views of Young People with Long Term Health Conditions’.


Coyne, I. (2006). ‘Consultation with children in hospital: children, parents’ and nurses’ perspectives’. Journal of Clinical Nursing, 15 (1), 61-71.


Coyne, I. (2008). ‘Children’s participation in consultations and decision-making at health service level: A review of the literature’. International Journal of Nursing Studies, 45 (11), 1682-1689.


Coyne, I. and Harder, M. (2011). ‘Children’s participation in decision-making: balancing protection with shared decision-making using a situational perspective’. J Child Health Care, 15 (4), 312 – 319.


Curtis-Tyler, K. (2011). ‘Levers and barriers to patient-centred care with children: findings from a synthesis of studies of the experiences of children living with type 1 diabetes or asthma’. Child: Care, Health & Development, 37 (4), 540-550.


Curtis-Tyler, K. (2012). ‘Facilitating children’s contributions in clinic? Findings from an in-depth qualitative study with children with Type 1 diabetes’. Diabetic Medicine, 29 (10), 1303-1310.


Department of Health (2003). Getting the right start: National Service Framework for Children: Standard for Hospital Services London: Department of Health.

Desai, P.P. and Pandya, S.V. (2013). ‘Communicating with Children in Healthcare Settings’. Indian Journal of Paediatrics Dec; 80(12): 1028-33

Donnelly, M. and Kilkelly, U. (2011). ‘Child-friendly Healthcare: Delivering on the right to be heard’. Medical Law Review, 19 (1), 27-54.


Franklin, A. and Sloper, P. (2006). ‘Children’s Participation in Healthcare’. In M. Freeman (Ed.), Children’s Health and Children’s Rights. Leiden: Martinus Nijoff Publishers.


Gabe, J., Olumide, G. and Bury, M. (2004). ‘It takes three to tango: a framework for understanding patient partnership in paediatric clinics’. Soc Sci Med, 59 (5), 1071 – 1079.


GP Champions for Youth Health Project. A partnership between the Association for Young People’s Health (AYPH), the Royal College of General Practitioners’ (RCGP) Adolescent Health Group and Youth Access. ‘Commissioning Effective Primary Care Services for Young People’. 


Ha, J. F. and Longnecker, N. (2010). ‘Doctor-Patient Communication: A Review’. The Ochsner Journal, 10 (1), 38-43.


Howells, R. J., Davies, H. A. and Silverman, J. D. (2006). ‘Teaching and learning consultation skills for paediatric practice’. Archives of Disease in Childhood, 91 (4), 367-370.


Howells, R. J., Davies, H. A., Silverman, J. D., Archer, J. C. and Mellon, A. F. (2010). ‘Assessment of doctors’ consultation skills in the paediatric setting: the Paediatric Consultation Assessment Tool’. Arch Dis Child, 95 (5), 323-9.


Karnieli-Miller, O. and Eisikovits, Z. (2009). ‘Physician as partner or salesman? Shared decision-making in real-time encounters’. Social Science and Medicine, 69 (1), 1–8.


Kelsey, J., Abelson-Mitchell, N. and Skirton, H. (2007). ‘Perceptions of young people about decision making in the acute healthcare environment’. Paediatric Nursing, 19 (6), 14-18.


Levetown, M. (2008). ‘Communicating with children and families: from everyday interactions to skill in conveying distressing information’. Pediatrics, 121 (5), e1441-e1460.


Levinson, W., Lesser, C. S. and Epstein, R. M. (2010). ‘Developing physician communication skills for patient-centered care’. Health Aff (Millwood), 29 (7), 1310-8.


Makoul, G. (2001). ‘Essential Elements of Communication in Medical Encounters: The Kalamazoo Consensus Statement’. Academic Medicine, 76 (4), 390-393.


Makoul, G. and Clayman, M. (2006). ‘An integrative model of shared decision making in medical encounters’. Patient Education and Counselling, 60, 301-312.


McCabe, M. (1996). ‘Involving children and adolescents in medical decision making: developmental and clinical considerations’. J Pediatr Psychol, 21 (4), 505 – 516.


National Voices. (2014). Supporting shared decision-making: Summarising evidence from systematic reviews. [Online]. 


Tates, K., Elbers, E., Meeuwesen, L. and Bensing, J. (2002a). ‘Doctor-parent-child relationships: a ‘pas de trois”. Patient Educ Couns, 48 (1), 5-14.


Tates, K. and Meeuwesen, L. (2001). ‘Doctor-parent-child communication. A (re)view of the literature’. Soc Sci Med, 52 (6), 839-51.


Tates, K., Meeuwesen, L., Bensing, J. and Elbers, E. (2002b). ‘Joking or Decision-Making? Affective and instrumental behaviour in doctor-parent-child communication’. Psychology and Health, 17 (3), 281–295.


The Health Foundation (2012). When doctors and patient’s talk: making sense of the consultation. London: The Health Foundation.


The Health Foundation (2014). Person-centred care: from ideas to action.  Bringing together the evidence on shared decision making and self-management support. London: The Health Foundation.


Towle, A., Godolphin, W., Grams, G. and LaMarre, A. (2006). ‘Putting informed and shared decision making into practice’. Health Expectations, 9, 321–332.


Wassmer, E., Minnaar, G., Abdel Aal, N., Atkinson, M., Gupta, E., Yuen, S. and Rylance, G. (2004). ‘How do paediatricians communicate with children and parents?’. Acta Paediatr, 93 (11), 1501-6.

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