Valuing the Views of Children with a Learning Disability

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Audience: healthcare professionals, commissioners

This booklet is a resource for anyone involved in supporting children with learning disabilities, including:
• Professionals responsible for developing Education, Health and Care plans for children with learning disabilities (EHCPs)
• Professionals conducting Care, Education and Treatment reviews (CETRs) for children with learning disabilities in hospital settings or community CETRs for children at risk of admission
• Transforming Care boards (who have a responsibility to engage children to inform their work)

Why this resource is needed:  Children and young people across the country are often left out of decisions and processes that impact their lives. This is particularly true for individuals with learning disabilities and even more so for children with severe learning disabilities or profound and multiple learning disabilities. It is very unusual for children with severe learning disabilities to be asked to directly contribute their experiences to discussions about their wellbeing.

This resources is from Mencap and The Challenging Behaviour Foundation.

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